Play and Possibility
Olivia Rosenthal’s We’re Not Here to Disappear and the Limits of Understanding Alzheimer’s Disease
Mots-clés :
Narrative, imagination, dementia, medical humanities, fiction, gerontologyRésumé
Cultural representations of Alzheimer’s disease typically focus on the social and emotional burdens felt by family and friends, diluting or excluding the experience of the sufferer. This article demonstrates how narrative fiction may help us to engage with the experiences of individuals with Alzheimer’s disease by imagining what it might be like to suffer from the disease ourselves. Demonstrating the humanized and subjective understanding of Alzheimer’s disease articulated in Olivia Rosenthal’s (2007) On n’est pas là pour disparaître [We’re Not Here to Disappear (2015)] this article also exposes the limitations of narrative fiction as a means of highlighting our own ignorance in the face of others’ experiences.
Références
Alzheimer’s Disease International. (2015). World Alzheimer report 2015: The global impact of dementia. Retrieved from https://www.alz.co.uk/research/WorldAlzheimerReport2015-sheet.pdf
Brockmeier, J., & Meretoja, H. (2014). Understanding narrative hermeneutics. Storyworlds, 6(2), 1–27.
Burke, L. (2008). “The country of my disease”: Genes and genealogy in Alzheimer’s life-writing. Journal of Literary Disability, 2(1), 63–74.
Burke, L. (2015). The locus of our dis-ease: Narratives of family life in the age of Alzheimer’s. In M. Schweda & A. Swinnen (Eds.), Popularizing dementia: Public expressions and representations of forgetfulness (pp. 23–41). Verlag.
Cain, S. (2014, August 23). Interview with Malorie Blackman: “Children’s books still have a long way to go before they are truly diverse.” The Guardian. Retrieved from https://www.theguardian.com/childrens-books-site/2014/aug/23/malorie-blackman-teen-young-adult-fiction-diversity-amnesty-teen-takeover-2014
DeBaggio, T. (2002) Losing my mind: An intimate look at life with Alzheimer’s. The Free Press.
Eakin, P. J. (2004). What are we reading when we read autobiography? Narrative, 12(2), 121–132.
Fraser, B. (2018). Sequencing Alzheimer’s dementia: Paco Roca’s graphic novel Arrugas [Wrinkles (2008)]. In Cognitive disability aesthetics: Visual culture, disability representations, and the (in)visibility of cognitive difference (pp. 136–169). University of Toronto Press.
Goldie, P. (2012). The mess inside: Narrative, emotion, and the mind. Oxford University Press.
Kaufman, S. R. (2006). Dementia-near-death and “life itself.” In A. Leibing & L. Cohen (Eds.), Thinking about dementia: Care, loss, and the anthropology of senility (pp. 23–42). Rutgers University Press.
Kitwood, T. (1997). Dementia reconsidered: The person comes first. Open University Press.
Krüger-Fürhoff, I. M. (2015). Narrating the limits of narration: Alzheimer’s disease in contemporary literary texts. In M. Schweda & A. Swinnen (Eds.), Popularizing dementia: Public expressions and representations of forgetfulness (pp. 89–108). Verlag.
Lyman, K. A. (1989). Bringing the social back in: A critique of the biomedicalization of dementia. The Gerontologist, 29(5), 597–605.
Malabou, C. (2012). The new wounded: From neurosis to brain damage [Les nouveaux blessés (2007) (S. Miller, Trans.)]. Fordham University Press.
Meretoja, H. (2018). The ethics of storytelling: Narrative hermeneutics, history, and the possible. Oxford University Press.
Nussbaum, M. (2010). Not for profit: Why democracy needs the humanities. Princeton University Press.
Peck, R. (1991). Anonymously yours. Messner.
Rosenfeld, A. H. (1980). A double dying: Reflections on holocaust literature. Indiana University Press.
Rosenthal, O. (2007). On n’est pas là pour disparaître. Gallimard.
Rosenthal, O. (2015). We’re not here to disappear (B. Mousli, Trans.). Otis Books
Sabat, S. (2001). The experience of Alzheimer’s disease: Life through a tangled veil. Blackwell.
Sicher, E. (2005). The Holocaust novel. Routledge.
Warnock, M. (1972). Introduction. In J. P. Sartre, The psychology of imagination (pp. iv–xvii). Methuen. (Original work published 1940)
Williams, R. (1977). Marxism and literature. Oxford University Press.
Zeilig, H. (2015). What do we mean when we talk about Dementia? Exploring cultural representations of “dementia.” Working with Older People, 19(1), 12–20.
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